Information about PATH B partner societies:
European Liver Patients Association (ELPA)
In 2004, 13 patient groups from 10 European and Mediterranean Basin countries met to create the association and ELPA was formally launched in Paris in 2005. It now has 22 members from 14 countries. ELPA’s aim is to promote the interests of people with liver disease and in particular to highlight the size of the problem and promote awareness and prevention. ELPA works with professional bodies such as EASL and the EU to ensure that treatment and care are harmonised across Europe to the highest standards. For more information visit: www.elpa-info.org
World Hepatitis Alliance (Alliance)
The World Hepatitis Alliance is a not-for-profit international umbrella Non-Governmental Organisation (NGO) whose membership is composed of organisations working in the field of viral hepatitis. It is patient-led and patient-driven. As a coalition of advocacy groups, the Alliance is a global voice for the 500 million people worldwide living with chronic viral hepatitis B or C. Through better awareness, prevention, care, support and access to treatment, their ultimate goal is to work with governments to eradicate these diseases from the planet. For more information visit: www.worldhepatitisalliance.org
British Liver Trust
The British Liver Trust is a national registered charity based in the UK. The British Liver Trust offers dedicated resources for people with liver disease such as a website, helpline and publications. It aims to reach out to as many people as possible by providing information and support and lobbying for the services people with liver disease need. The British Liver Trust has strong contacts with professionals in the field of hepatology that enable it to provide the most up to date information. For more information visit: www.britishlivertrust.org.uk
Associació Catalana de Malalts d’Hepatitis (ASSCAT)
The Catalan Association of Hepatitis Patients was founded in Barcelona in 2000. Their objectives comprise of providing support in all aspects of the disease; disseminating information for the prevention and early diagnosis of hepatitis B and C, increasing awareness to avoid the stigma and supporting research initiatives aimed at caring for and curing the sick. For more information visit: www.asscat.org
Chinese Healthy Living Centre
The Chinese National Healthy Living Centre was founded in London in 1987 to promote healthy living and provide access to health services for the Chinese community in the UK. The Centre, based close to London’s Chinatown, provides a range of services designed to tackle both the physical and psychological obstacles that affect the health of the Chinese UK community. For more information visit: www.cnhlc.org.uk
Associazione EpaC onlus
EpaC Association was founded in 1999 to give support to people living with hepatitis and to developing practical and operational support mechanisms through counselling, education, prevention advice and information. EpaC has provided over 90,000 consultations, translated thousands of scientific documents into Italian and placed documents and interviews onto web sites, newspaper articles, radio and TV advertisements. For more information visit: www.epac.it
SOS Hépatites
The SOS HEPATITIS FEDERATION was founded in November 1996 to bring together groups of associations to work in the defence against hepatitis. The association aims to provide support to people affected by viral hepatitis and liver disease, regardless of the particular virus and modes of contamination. The association also supports and promotes research into hepatitis and liver disease. For more information visit: www.soshepatites.org
Deutsche Leberhilfe
Deutsche Leberhilfe was founded over 20 years ago. It is a national non-profit organisation that has established itself as the trusted information point between doctors and patients. Its aim is to help patients to help themselves through providing advice to them, their families and carers. The association also works to inform the public about possible causes of liver disease, therapies and prevention. It hopes to dispel the prejudices and myths of liver disease as a “self-inflicted” disease. The association is led by a volunteer board that consists of four patients and two hepatologists working remotely from cities across Germany. Furthermore, five dedicated experienced staff based at the Leberhilfe office deal with day-today affairs. To respond to medical questions, the association is supported by a scientific advisory board that consists of specialists and scientists.For more information visit: www.leberhilfe.org
“There is a large information gap for chronic hepatitis B patients between their initial diagnoses and the long-term management of their disease. For the first time, this toolkit seeks to fill that unmet need for complete and reliable information that patients can depend on through every step of their disease.”
Achim Kautz
PATH B advisory board member
ELPA board member
“As a clinician, I have seen that patients who are more knowledgeable about their disease feel empowered and in control and tend to have better outcomes. This programme is one of the most comprehensive support tools for patients diagnosed with hepatitis B available, and helps patients and physicians engage in important conversations about managing their disease in the long-term.”
Dr. Mark Wilkinson
PATH B advisory board member
Guy’s and St Thomas’ Hospital, London, UK
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